What Patients With Psoriatic Arthritis Say Matters Most

This mixed-methods study examined how patients and clinicians prioritize aspects of psoriatic arthritis (PsA), highlighting key differences that can impact care. Researchers conducted focus groups with 24 patients with PsA across three US rheumatology centers, followed by a three-round Delphi survey with 38 patients and 13 expert clinicians. Using anthropological methods, they identified 51 domains reflecting both clinical symptoms and lived experience. While both groups agreed on the importance of arthritis, pain, fatigue, and physical function, patients emphasized quality-of-life concerns such as access to care, sleep, and future health uncertainty—areas clinicians rated lower.

Findings showed patients often prioritize the broader life impact of PsA, while clinicians focus more on clinical manifestations like dactylitis and structural damage. The study suggests that patient care could benefit from tools that better capture individual concerns and support shared decision-making. A brief, personalized questionnaire could help bridge this gap and foster more meaningful clinic conversations. Although limited by a relatively homogenous patient population, the research underscores the need to integrate patient voices more directly into PsA care planning.

Reference: Mease PJ, Husni ME, Siegel E, et al. What Matters in Psoriatic Arthritis: A Comparison of Patient and Clinician Perspectives. ACR Open Rheumatol. 2025 Jan;7(1):e11781. doi: 10.1002/acr2.11781. PMID: 39800893; PMCID: PMC11725532.